I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.
Wednesday, March 19, 2014
Hopeful & Optimistic...
I still cannot quite believe it. It is all so wonderful. Feeling so blessed and grateful, despite the past. I wanted this for so long, and by the end I really believed I would never have it. He is moving and kicking now, I can feel it. I'm starting to buy him little items of clothing and plan the baby room. I kept many of Amelie's things; the stroller/pram, car seat, toys, blankets and clothes. Yesterday I felt strong enough to sort through them pulling out the gender neutral colors while putting all the pretty girly things back in their boxes. Back to the basement, where they will sit once again. It feels good to prepare. To use Amelie's things, it doesn't make me sad but instead feels right, using his older sisters things. If she had lived, it would still be this way, I would use the hand me downs from her, just as I will now. I fluctuate between the hopeful happy place to the dark and worried place often still, I can't not. But the closer I get the more confident I become. He is 21 weeks now (past the halfway mark). It's huge. He is looking strong and healthy. I cannot believe how much he looks like here. Here are a few pics from today's ultrasound.
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2 comments:
Amazing! So hopeful for a healthy little brother in a few months!
Lovely scan pics & great to see happy posts :-)
xx Rianon
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