An Angel called Amelie

I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.

Pages

  • MY BLOG...
  • AMELIE
  • DEAR AMELIE
  • PHOTOS
  • HELPFUL RESOURCES
  • POEMS
  • THE DISORDER: Incontinentia Pigmenti

HELPFUL RESOURCES

Websites:

http://www.misschildren.org/
http://www.nationalshare.org/
http://www.marchofdimes.com/
http://facesofloss.com/
http://www.nowilaymedowntosleep.org/


For Dads:
http://facesofloss.com/resources/for-the-dads

Websites by other mothers for their Angels:
 http://www.laynegrace.com/

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