I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.
Saturday, August 20, 2011
So Sad...I Miss Her
Some days you wake up so sad, this is another one of those days. No motivation to get up or do anything. I spend hours in bed crying. My heart hurts, I feel like there really is a wound a physical wound in my heart that is aching so bad. People always talk about heartbreak, I never knew it could be real or that you can actually feel it and so intensely. I could stay like this forever..
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