I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.
Wednesday, August 17, 2011
Another Day...
A little better today...still feeling very fragile though. I went out with a sweet friend for lunch, caught up and chatted a little - it helped, a little distraction...they shared a story of a friend of theirs who also went through something similar to me a few years ago. I guess we are out there, this happens to others too, others have felt this pain. It helps to know I am not alone.
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