An Angel called Amelie

I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.

Tuesday, August 23, 2011

Memories

I have been thinking about doing this for a while now, to have our favourite photographs of Amelie printed and framed and put up around the house, one in each room. It was hard to do though, as it seems so final...I am so grateful we can do this, to be able to have pictures, I know many parents who lose their babies do not even have any photographs. I have 22 - taken while she was well, these are all I have next to my memories of her. I am so thankful for these, they mean the world.

I look at them and will do so every single day.

Little footprints...so small in size, yet left such a big impact on us

Amelie in her first little outfit, looking so beautiful

Us as a family

One of my favourites, she is sleeping in Aaron's arms, she looks so happy and peaceful

(which is how I hope she is now, peaceful and happy).

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