I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself.
Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%.
This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.
Still 11 fertilized little embryos. 4 are excellent, 3 are good and 4 are slow and unlikely to be able to use. So 7 possible options.That's all I know so far. I'm so proud of them and so relieved we have made it this far, it is all so surreal.
2 comments:
Anonymous
said...
Oh I just found your photos. Your daughter Amelie is beautiful. Good luck - do you have any updates?
2 comments:
Oh I just found your photos. Your daughter Amelie is beautiful. Good luck - do you have any updates?
Rianon
... and read your poem... no words left
love, Rianon
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