I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.
Saturday, May 19, 2012
IVF Post: #12
What a disappointment. Our doctor just called to update us
on how our precious little embryos are coming along. Full of confidence from
the previous updates; that they were doing so well. I could not believe the
words I was hearing. Out of the 11 fertilized ones, only 3 were looking like
they were strong enough for a transfer. The rest were just too slow and
abnormal. The 3 right now weren’t excellent quality like before but just medium
or ok. How could this happen? How could things change so quickly? Suddenly our chances were fading fast. Will we
even have anything left to transfer for Monday? We still have to get the PGD
biopsy results for which have IP (which is most likely 1 out of 2). That means
best case scenario…. we have 2 healthy embryos to implant OR 1. (Transfer of 1
meaning only 30% chances of pregnancy..wow). Worst case would be, no transfer..
nothing at all. All this for nothing. I couldn’t help but obsess over this
possibility. Disappointment and loss are all I know. It’s almost a comfortable
and familiar feeling that I have come to know so well. My genes have let me
down yet again just like before. Instead of trying to be hopeful, think
positive like other ‘non baby-lost’ parents would do, I went to this dark place
again. I started thinking, reconsidering the possibilities of egg donors and
adoptions and or remaining childless for the rest of our lives….More fear and
apprehension now until we face Monday.
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