An Angel called Amelie

I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.

Tuesday, June 26, 2012

(Happy) Birthday Sweetie...

Of course 'happy' is not the right word here. I just wanted to wish you what I would be wishing you if you were here today. We love you and miss you so much, my sweet precious child. Always and forever, with every fiber of my being, every feeling and thought I am always with you as you here with me, every single second of the day. We love you Amelie xx