I just lost my beautiful baby girl. She was only 19 days old. When she died, I lost my hopes, dreams, future as well as part of myself. Ater she died, I learned it was because of a rare genetic disorder called Incontinentia Pigmenti, which she inherited from me. I never knew I had it as I have no symptoms. With IP the chances of having a healthy child are only 50%. This is my life without my baby. My struggle to face every day as I long for my daughter and hope for a healthy child.
Monday, August 15, 2011
A Nightmare I can't Wake Up From...
All I want to do today is stay in bed and not get up...not because I'm tired but because I feel like there is no reason to get up, nothing is important enough. Daily tasks seem so pointless, so stupid. I just lost my baby, the person most important to me in life - nothing could be worse. I have no motivation, nothing is important, I'm going to stay in bed all day and cry.
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